I'm over at Hopeful Parents today talking about why I'm kinda thrilled to be suddenly destitute. You read that right. Go and see!
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March 4, 2011
new HP post
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I saw your post on hopeful parents.I was wondering what sort of connective tissue disorder u and your children have? My son and husband have marfan syndrome which is also a connective tissue disorder. We are also getting my son (whose two) tested for speech delay issues. I haven't come across another family with both issues before so I just wanted to drop by and say hi! I'll add your blog on my blog list.
Posted by: Rachel | March 4, 2011 at 01:26 PM
EDS Hypermobility. Although my friend Maya (@MarfanMom on the Twitter) has Marfan (as does one of her children) and a son with speech issues...she's very knowledgeable and can probably give you a list of people to read and talk to :)
Posted by: MFA Mama | March 4, 2011 at 06:08 PM